Rare Disease Day at emotive

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February 29th is Rare Disease Day and this week emotive has focused on raising awareness of rare disorders and the lives of those living with a rare disease.

On Monday, we held Cake Day – an opportunity to raise money for Action Medical Research, a charity that Senior Account Executive, Claire, is raising money for as she prepares to run the London Marathon in April. Claire chose to run for Action Medical Research as they fund research into childhood rare diseases, cancers and premature births, and they have made some ground-breaking achievements in the medical world, including developing the first polio vaccines in the UK.

We are incredibly impressed with Claire’s commitment to this cause, and enjoyed doing our bit by donating and eating chocolate ‘salami’, lemon drizzle cakes, raspberry cupcakes and more! If you want to join us in supporting this cause, donations can be made through this link: www.justgiving.com/fundraising/claire-mitchell49     

Tuesday was Pancake Day and we combined this with a screening of films from this year’s Rare Film Festival. We decamped to the sofas over lunch to watch some of the films that were screened at the Festival on February 10th at the Regent Street Cinema. The films offered a variety of perspectives, from those living with a rare disease to a family coping with the impact of a rare disease diagnosis, or indeed the lack of diagnosis. Some films were moving, some inspirational and others educational, but all served to raise awareness of the knowledge gaps and importance of understanding these often-neglected diseases. We finished up by voting for our favourite to win the People’s Choice Award, which was Go Make Memories.

Last week, emotive attended Medics 4 Rare Diseases (M4RD) Annual Symposium, “The Unusual Suspects: Rare Diseases in Everyday Medicine”, held at the Royal Society of Medicine, London. The M4RD Annual Symposium welcomes medical professionals, trainees and medical students to come together and explore how to improve rare disease management in the UK. emotive has been working with M4RD since 2018, providing support on several projects in this time. Senior Medical Copywriter, Aaron Hall, and Senior Account Executive, Claire Mitchell, attended the event and wrote a comprehensive meeting report in the run-up to Rare Disease Day. Read Aaron’s report that we published on Wednesday here: https://thinkemotive.com/medics4rarediseases-annual-symposium-2020/  

To round up our activities this week, we ran a rare disease quiz where we split into groups and tested our general knowledge of things that have happened on February 29th over the years. As usual when it comes to quizzes at emotive, there was a healthy amount of competitiveness and the winners left with the best prize of all – pride!  

To learn more about M4RD, visit https://www.m4rd.org, and to hear more about our partnership with them, visit our blog https://thinkemotive.com/medics4rarediseases-annual-symposium-2020/

To find out more about rare disorders, visit Rare Disease UK at https://www.raredisease.org.uk 

emotive is an independent, London-based, award-winning healthcare communications agency committed to changing lives by helping global life science companies bring novel and innovative products to patients. We recognise that only true engagement can facilitate change, & we use our combination of scientific, creative and technical expertise to stimulate optimal participation of all those in the care pathway. We are proud to work with amazing clients on some of the most exciting and meaningful products that will transform healthcare.

If you would like to find out more about joining emotive, please contact Jade on Jade@thinkemotive.com For more information about our services email chris@thinkemotive.com. 

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